I should mention that I am sending her to kindergarten at the same place where she currently goes to pre-school. She already knows the teacher and is very familiar with the surroundings. I also am the chair-person for their fundraiser in the fall so I will be spending a lot of time there. So.... I do not have a heart of ice just very spoiled next year : )
She will be going to school all day and she is ready! I could not say that last year so I am very happy with my decision to hold her back. I have no doubt that the first part of the year will be an adjustment and I often contemplate what activities if any I will enroll her in for the fall. Keeping it together all day will be physically exhausting. If we lived in the south and I could just let her run around outside for a half an hour that would work. We don't.
If I have to pick one activity for her to do it would be swimming. She loves it and it gives her muscles a great work out with hurting her joints. I would pick this over PT, Gymnastics, Ballet, etc. She belongs to the local YMCA. The lessons are reasonable and she has a fantastic instructor! The best part is at most she has 2 other kids in her class. In-fact for the first 5 months of classes she was the only kid in the class. Unfortunately the class is at 2pm and this instructor only teaches it on Thursdays.....
Is it worth taking her out of school early to get the benefits of the class? There is another mother in the class before whose daughter also has hypotonia. She actually gave me the idea to take her out. She doesn't think her daughter will receive services next year and was having the same issue. She felt it was worth taking her out early one day for the benefits of the class. I talked to the director of the school about it and she was hesitant. In the end it is kindergarten and taking her out won't be the end of the world. Just another decision to contemplate. I guess that is par for the course.
I, too have a hypotonic child. Do you still blog?
ReplyDeleteI do but have taken a break from this one. I was busy with some other projects and we relocated. This blog has helped me deal with some of the frustration from having a daughter with hypotonia so I am sure I will be at it again soon!
DeleteHi there! I have a 5 year old that is hypotonic. We just foun out earlier this year. It's nice to know I'm not crazy and that my son isn't the only one with this. We still don't have a diagnosis. We are currently living in Germany and keep hitting "road blocks" with the German doctors who don't seem to know a lot about it. It's been one headache after another. Anyways, I hope your daughter is doing well in school and in all her extra activities. Thanks for writing the blog. Your links have been very helpful too. :)
ReplyDeleteKeep breaking down the road blocks. I have to admit I had taken a break thinking I know all I am going to know but I am back at it again... Hope you have had some luck with a diagnosis. Hope your son is doing well!
ReplyDeleteKeep breaking down the road blocks. I have to admit I had taken a break thinking I know all I am going to know but I am back at it again... Hope you have had some luck with a diagnosis. Hope your son is doing well!
ReplyDeleteKeep breaking down the road blocks. I have to admit I had taken a break thinking I know all I am going to know but I am back at it again... Hope you have had some luck with a diagnosis. Hope your son is doing well!
ReplyDelete