One thing I have learned in life is I don't know what I don't know until I know it! I never in a million years would have thought my daughter had Hypotonia because I never even heard of it. I don't have any experience in the medical field or with kids so there are a lot of things I don't know. You can't research something if you don't know it exists.
I have found as a parent my best resource is other parents. I used to be a pretty private person. I always let other people do the talking and didn't share much about myself. Since having my daughter that has changed. I talk to everyone about everything. I am always amazed how much I learn.
At my daughter's swimming lesson I met a mother whose daughter also has Hypotonia. She told me about her plight with her school district. They denied her daughter services and she got an advocate for her daughter. Again, didn't know they existed. The school district certainly does not tell you they do. So I was able to look into getting an advocate for my daughter.
At the park I met a mother whose daughter is in Special Education in my school district. She also has an advocate for her daughter. She gave me lots of pointers for dealing with the school.
I go could on but the point is I used to think telling the world my problems was a sign of weakness. I now know that everyone has problems and most people are happy to help with kind words and information. So I say tell the world your problems, you never know who is going to be able to help.
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