The Care and Feeding of a Child with Hypotonia

No matter how hard I have tried I can't make this "Hypotonia" go away.  Up until a year ago I was told nothing was wrong and now no one can tell me how to "Fix" my daughter.  She has been to two allergists and an ENT thinking maybe it is an allergy or her adenoid.  No.  I have actually even thought perhaps WE ARE CODDLING HER and tried to push her, that didn't work either.

After a year of specialists and tests I have finally accepted this condition is not going away.  Yet still, no one can tell me definitively how to help my daughter.  I kept waiting for the pamphlet titled "Hypotonia a Parent's Guide".  I never got one.  (If it is out there please let me know where I can pick it up!)  It would tell me what pain she might be experiencing, how often to exercise, special food to help her feel good, she will tire easily, have emotional outbursts and seizures, etc..

Since there is no "PAMPHLET" I like every other parent "WING IT".  I take her to PT, Ballet and Swimming.  I try to find activities at home to help build her strength (maybe feeling guilty about not doing more at home is a bit more accurate).  I try and provide emotional support when she is upset about not keeping up with kids at school but still I am left feeling a bit helpless.    So when feeling helpless it seems I always look to food.  

We live in a very diet driven society.  There is a lot of advice about eating and I for one am a believer.  I think we are what we eat and your diet has a dramatic impact on how you feel physically and emotionally.  So I searched for diet help with Hypotonia.  Not surprisingly I didn't find a whole lot.  I did find the following article.  Please keep in mind I am NOT talking about Hypotonia that has a metabolic cause.

http://www.kellydorfman.com/images/Low_Muscle_Tone-website_1_.pdf

I thought this article offered good advice about Nutrients to help supply energy and build muscle.  I am not a huge fan of suppliments so I am looking for ways to get these nutrients into my daughter without them.  Not an easy task.  Let's face it kids are picky eaters, add weak jaw muscles and potintial sensory issues into the mix it seems almost impossible.  So suppliments may be the best option but for now I am going to try food.  If nothing else it makes me feel like I am at least trying to help her.